Upcoming Events
Rare Disease Day
FEB. 28, 2026
Join us as we celebrate Rare Disease Day with the global rare disease community and raise awareness!
Rare Disease Day Eve fundraiser with Panda Express: Tell your friends and family to dine out for a great cause! Order online at any Panda Express in the U.S. with our special code and 28 percent will go back to Cure LBSL!
Wear your rare: Order apparel from our special Rare Disease Day catalog and rock it on Feb. 28! A portion of each sale goes back to Cure LBSL — and tag @cureLBSL in your photos on social media!
2026 LBSL PATIENT & FAMILY CONFERENCE
JULY 23-26, 2026
Join us virtually July 23-26 for an impactful, insightful conference! More details to come!
LBSL Awareness Day
SEPT. 20, 2026
We’re making LBSL Awareness Day bigger and better than ever this year! Stay tuned for more details!
Giving Tuesday
DEC. 1, 2026
Support Cure LBSL on Giving Tuesday and double your impact with a matching opportunity!
Facebook Fundraisers
ANYTIME!
Birthdays, anniversaries or just because — the sky’s the limit on reasons to host a Facebook fundraiser to support Cure LBSL!