Get Involved
Sept. 20 is LBSL Awareness Day!
Did you know September is widely recognized as Leukodystrophy Awareness Month, and the third week of September is also recognized as World Mitochondrial Disorders Awareness Week? As LBSL is both a leukodystrophy and a mitochondrial disorder, we host LBSL Awareness Day on Sept. 20. For more information: https://rarediseases.org/event/lbsl-awareness-day
Fairlington 5K
It is with great sadness that we have to announce the cancelation of the Fairlington 5K indefinitely. We want to thank everyone who supported this effort over the last seven years. You helped raise $130K for a cure. For more information, please click HERE.
Kendra Scott Jewelry Event
When: Details coming soon!
Where: Online
Description: Shop for a cause! Stay tuned for more details about our next fundraiser with Kendra Scott.
#GivingTuesday
When: Dec. 2, 2025
Where: Facebook and online
Description: Giving Tuesday is one way you can show your support to the LBSL community! Whether you up a Facebook fundraiser or give through our website, every dollar helps make a difference!
Create a Facebook Fundraiser
On your computer, log in to your Facebook account
On the left, click on Fundraisers (heart coin) (see photo 1 below)
On the left, click Raise Money, and select Nonprofit (see photo 2 below)
Type into the search bar “Cure LBSL” (see photo 3 below)
On the left, enter the goal amount you want to raise, the currency, and the end date (see photo 4 below)
Click Create
You’ll see a screen pop up where you can invite your friends to donate to your fundraiser, share your fundraiser in your news feed, or donate to the fundraiser yourself.
